I was so sorry to here about john, i was diagnosed 15months ago and john story helped me understand what this disease was and how it was goin to affect me and my family.I am only 31 and im my wheelchair with in 6months off being told.i just hope i can be as strong as you and your family have been.charlette,i hope you and the boy fine peace with the loss of john.my wife now we to got marrried after me being diagnosed with mnd.you will always be in my thoughts and prayers.